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Marfan Syndrome

Showing 1 - 25 of 42
STUDY
CONDITIONS
INTERVENTIONS
LOCATIONS
LAST UPDATED

Chronic Pain, Marfan Syndrome, Vascular Ehlers-Danlos Syndrome Trial (Empowered Relief)

Not yet recruiting
  • Chronic Pain
  • +3 more
  • Empowered Relief
  • (no location specified)
Aug 5, 2023

Towards Optimal Treatment of Marfan Syndrome

Recruiting
  • Marfan Syndrome
  • Magnetic Resonance imaging examination
  • Nijmegen, Gelderland, Netherlands
  • +3 more
Jul 6, 2023

Marfan Syndrome Trial in Toulouse (Adapted Physical Activity program)

Not yet recruiting
  • Marfan Syndrome
  • Adapted Physical Activity program
  • Toulouse, France
    CHU Toulouse
Apr 20, 2023

Marfan Syndrome, Loeys-Dietz Syndrome Trial in Houston (Exercise Intervention Group, Control Group)

Not yet recruiting
  • Marfan Syndrome
  • Loeys-Dietz Syndrome
  • Exercise Intervention Group
  • Control Group
  • Houston, Texas
    Texas Children's Hospital
Mar 30, 2023

Analysis of Muscular Properties in Patients With MFS and EDS

Recruiting
  • Rare Diseases
  • +2 more
  • Analysis with Ergometer
  • San Donato Milanese, Lombardia, Italy
    IRCCS Policlinico San Donato
Feb 15, 2023

Hypertension, Aortic Aneurysm, Bicuspid Aortic Valve Trial (Laser doppler vibrometry (LDV), heart(cordium) carotid pulse wave

Not yet recruiting
  • Hypertension
  • +4 more
  • Laser doppler vibrometry (LDV), heart(cordium) carotid pulse wave velocity (ccPWV)
  • +3 more
  • (no location specified)
Jan 25, 2023

Psychological Support in Adult Patients With Marfan Syndrome

Recruiting
  • Rare Diseases
  • +2 more
  • Questionnaire
  • San Donato Milanese, Lombardia, Italy
    IRCCS Policlinico San Donato
Jan 25, 2023

Marfan Syndrome and Facial Dysmorphism: Non-invasive 3D

Recruiting
  • Rare Diseases
  • Marfan Syndrome
    • San Donato Milanese, Lombardia, Italy
      IRCCS Policlinico San Donato
    Jan 27, 2023

    Transcriptomic Study of Adult Population With Marfan Syndrome

    Recruiting
    • Marfan Syndrome
    • Marfan's Syndrome With Cardiovascular Manifestations
    • Transcriptomic, epigenetic and proteomic analysis
    • San Donato Milanese, Milan, Italy
      Irccs Policlinico San Donato
    Jan 17, 2023

    Clinical Signs and Activity Limitations Associated With Dural

    Completed
    • Marfan Syndrome
    • Questionnaire
    • Paris, IDF, France
      CNMR Bichat
    Dec 30, 2022

    Surgical Treatment of Marfan Syndrome With Subluxation Lens

    Active, not recruiting
    • Marfan Syndrome
    • Lens Subluxation or Dislocation
    • surgical treatment of Marfan Syndrome with subluxation lens
    • Hangzhou, China
      Second Affiliated Hospital, Zhejiang University School of Medici
    Oct 11, 2022

    Marfan Syndrome Trial in Paris (Endurance training, Muscle building training)

    Completed
    • Marfan Syndrome
    • Endurance training
    • Muscle building training
    • Paris, France
      Groupe Hospitalier Bichat - Claude Bernard
    Sep 30, 2022

    Safety and Performance of POLYTHESE® Vascular Prosthesis

    Completed
    • Aneurysm Arterial
    • +4 more
    • Implantation with POLYTHESE®
    • Caen, France
    • +2 more
    Aug 23, 2022

    Proximal Aortopathy in Scotland - Epidemiology and Surgical

    Not yet recruiting
    • Aortic Diseases
    • +8 more
    • Surgery on the proximal aorta (aortic root +/- ascending aorta)
    • Patients diagnosed with thoracic aortopathy but not operated upon
    • (no location specified)
    May 21, 2022

    Mortality and Morbidity Outcomes in Marfans

    Not yet recruiting
    • Marfan Syndrome
    • Marfan Syndrome Cardiovascular Manifestations
      • (no location specified)
      Apr 4, 2022

      Biological Collection for Marfan and Related Syndromes

      Recruiting
      • Marfan Syndrome
      • collection of samples of blood and urine
      • Toulouse, France
        Purpan University Hospital
      Mar 21, 2022

      Complex Aortic Aneurysms, Thoracoabdominal Aneurysms, Pararenal Aneurysms Trial in Worcester (Custom Made Fenestrated or

      Recruiting
      • Complex Aortic Aneurysms
      • +7 more
      • Custom Made Fenestrated or Branched Stent Graft
      • Worcester, Massachusetts
        UMass Memorial Health Care - University Campus
      Feb 1, 2022

      Marfan Syndrome Trial in Houston (Exercise Intervention Group)

      Recruiting
      • Marfan Syndrome
      • Exercise Intervention Group
      • Houston, Texas
        Texas Children's Hospital
      Nov 18, 2021

      Marfan Syndrome Trial in Palo Alto (Tele-Clinic Visits Using Parent-Acquired Echos)

      Completed
      • Marfan Syndrome
      • Tele-Clinic Visits Using Parent-Acquired Echos
      • Palo Alto, California
        Lucile Packard Children's Hospital
      Mar 15, 2021

      Quality of Life ofTherapeutic Education Program in Marfan

      Active, not recruiting
      • Marfan Syndrome
      • Therapeutic Education Program
      • Toulouse, France
        UHToulouse
      Jan 28, 2021

      Marfan Syndrome Trial in Palo Alto (Exercise)

      Completed
      • Marfan Syndrome
      • Exercise
      • Palo Alto, California
        Stanford Children's Health
      Jul 23, 2020

      Classifying Ectopia Lentis in Marfan Syndrome Into Five Grades

      Completed
      • Marfan Syndrome
      • Ectopia Lentis
      • ophthalmological examinations using a slit lamp bio microscopy and a three-mirror lens, standard procedure.
      • Bron, France
        Hopital Femme Mère Enfant
      Mar 25, 2020

      Pregnancy in Rare Multisystemic Vascular Diseases: COGRare5

      Not yet recruiting
      • Vascular Anomaly
      • +5 more
      • Questionnaire
      • Angers, France
      • +31 more
      Dec 9, 2019

      Thoracic Aorta Dilatation, Marfan Syndrome Trial in Aarhus

      Completed
      • Thoracic Aorta Dilatation
      • Marfan Syndrome
        • Aarhus, Region Midtjylland, Denmark
          Aarhus University Hospital
        May 1, 2018

        Studies of Heritable Disorders of Connective Tissue

        Completed
        • Ehlers-Danlos Syndrome
        • +2 more
          • Baltimore, Maryland
            National Institute of Aging, Clinical Research Unit
          Apr 4, 2018