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marfan syndrome

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Quality of Life ofTherapeutic Education Program in Marfan

Active, not recruiting
  • Marfan Syndrome
  • Therapeutic Education Program
  • Toulouse, France
    UHToulouse
Jan 28, 2021

Sleep-disordered Breathing, Snoring Trial in Baltimore (CPAP)

Completed
  • Sleep-disordered Breathing
  • Snoring
  • CPAP
  • Baltimore, Maryland
    Johns Hopkins University
Dec 2, 2020

DiGeorge Syndrome, DiGeorge Anomaly, Complete DiGeorge Anomaly Trial in Durham (Thymus Tissue for Transplantation)

Completed
  • DiGeorge Syndrome
  • +3 more
  • Thymus Tissue for Transplantation
  • Durham, North Carolina
    Duke University Medical Center
Mar 23, 2022

Marfan Syndrome Trial in Palo Alto (Exercise)

Completed
  • Marfan Syndrome
  • Exercise
  • Palo Alto, California
    Stanford Children's Health
Jul 23, 2020

DiGeorge Anomaly, Complete DiGeorge Anomaly, Complete Atypical DiGeorge Anomaly Trial in Durham (biological, other, procedure,

Completed
  • DiGeorge Anomaly
  • +4 more
  • Cultured Thymus Tissue for Implantation (CTTI)
  • +8 more
  • Durham, North Carolina
    Duke University Medical Center
Mar 23, 2022

Classifying Ectopia Lentis in Marfan Syndrome Into Five Grades

Completed
  • Marfan Syndrome
  • Ectopia Lentis
  • ophthalmological examinations using a slit lamp bio microscopy and a three-mirror lens, standard procedure.
  • Bron, France
    Hopital Femme Mère Enfant
Mar 25, 2020

Visual Prognosis and Complications of Ectopia Lentis Lens

Recruiting
  • Ectopia Lentis
  • Dislocation, Lens
    • Guangzhou, Guangdong, China
      Guangdong Provincial Clinical Research Center for Ocular Disease
    Dec 23, 2022

    Pregnancy in Rare Multisystemic Vascular Diseases: COGRare5

    Not yet recruiting
    • Vascular Anomaly
    • +5 more
    • Questionnaire
    • Angers, France
    • +31 more
    Dec 9, 2019

    Aortic Dissection Type B Trial in Bulgaria, Romania, Turkey (Implantation with the Multilayer Flow Modulator (MFM))

    Active, not recruiting
    • Aortic Dissection Type B
    • Implantation with the Multilayer Flow Modulator (MFM)
    • Burgas, Bulgaria
    • +3 more
    Oct 13, 2022

    High Myopia, Capsular Tension Ring Trial in Hangzhou (Cataract surgery with IOL implantation and with/without capsular tension

    Not yet recruiting
    • High Myopia
    • Capsular Tension Ring
    • Cataract surgery with IOL implantation and with/without capsular tension ring implatation
    • Hangzhou, Zhejiang, China
      Eye Hospital of Wenzhou Medical College
    Oct 13, 2021

    Thoracic Aortopathy Using 18F-Sodium Fluoride

    Active, not recruiting
    • Bicuspid Aortic Valve
    • +2 more
    • clinical evaluation, blood markers, pulse wave analysis, 18F sodium fluoride PET/CT and PET/MRI
    • Repeat 18F sodium fluoride PET/MRI
    • Edinburgh, United Kingdom
      University of Edinburgh
    Dec 13, 2022

    Dermatosis Trial in Paris

    Not yet recruiting
    • Dermatosis
      • Paris, France
        Service de gériatrie plaies et cicatrisation
      Oct 28, 2021

      Bicuspid Aortic Valve, Unicuspid Aortic Valve Trial in Houston

      Completed
      • Bicuspid Aortic Valve
      • Unicuspid Aortic Valve
        • Houston, Texas
          University of Texas Health Science Center Houston
        Sep 19, 2022

        Thoracic Aortic Dissection Trial in Ann Arbor, Saint Louis, Houston (Guided Exercise Training Program, Usual Care)

        Not yet recruiting
        • Thoracic Aortic Dissection
        • Guided Exercise Training Program
        • Usual Care
        • Ann Arbor, Michigan
        • +2 more
        Nov 4, 2022

        Autonomic Neuropathy, Ehlers-Danlos Syndrome Hypermobility Type, Small Fiber Neuropathy Trial in Aachen (No intervention

        Recruiting
        • Autonomic Neuropathy
        • +3 more
        • No intervention planned, but all patients get our standart treatment
        • Aachen, Nordrhein Westfalen, Germany
          University clinic RWTH Aachen
        May 9, 2022

        Vascular Health and Risk Factors in Children With Down Syndrome

        Recruiting
        • Down Syndrome
        • +2 more
        • Evaluate vascular disease risk factors in children with Down Syndrome
        • Determine the associations between cardiovascular disease risk factors and markers of early atherosclerosis in children with Down Syndrome
        • Salt Lake City, Utah
          University of Utah
        May 23, 2022

        Aortic Root Aneurysm, Aortic Root Dissection Trial in Assiut (Aortic valve sparing operation, Bentall operation)

        Recruiting
        • Aortic Root Aneurysm
        • Aortic Root Dissection
        • Aortic valve sparing operation
        • Bentall operation
        • Assiut, Egypt
          Assiut university
        Jan 9, 2022

        Thoracic Aorta Dilatation, Marfan Syndrome Trial in Aarhus

        Completed
        • Thoracic Aorta Dilatation
        • Marfan Syndrome
          • Aarhus, Region Midtjylland, Denmark
            Aarhus University Hospital
          May 1, 2018

          Striae Rubra Trial in Assiut (Pro-Yellow laser 577)

          Recruiting
          • Striae Rubra
          • Pro-Yellow laser 577
          • Assiut, Egypt
            AZHAR University Hospital
          Oct 27, 2022

          Bicuspid Aortic Valve Trial in Paris (Magnetic Resonance Imaging, Transthoracic echocardiography, Echography UltraFast)

          Recruiting
          • Bicuspid Aortic Valve
          • Magnetic Resonance Imaging
          • +2 more
          • Paris, France
            Hôpital Européen Georges Pompidou
          Mar 22, 2022

          Studies of Heritable Disorders of Connective Tissue

          Completed
          • Ehlers-Danlos Syndrome
          • +2 more
            • Baltimore, Maryland
              National Institute of Aging, Clinical Research Unit
            Apr 4, 2018

            PASS LP, PASS Degen and PASS Tulip Systems (PASS DEGEN)

            Recruiting
            • Thoracolumbar Disc Degeneration
            • +3 more
            • PASS LP implants
            • +3 more
            • Bruges, France
            • +2 more
            Dec 10, 2020

            Esophageal Cancer Trial in Baltimore (Liquid nitrogen spray cryotherapy with the truFreeze device)

            Terminated
            • Esophageal Cancer
            • Liquid nitrogen spray cryotherapy with the truFreeze device
            • Baltimore, Maryland
              University of Maryland Medical Center
            Mar 3, 2022

            Thoracic Aortic Aneurysm Expansion? A Prospective Cohort Study.

            Completed
            • Aortic Aneurysm
            • Obstructive Sleep Apnea
              • Zürich, Switzerland
                University Hospital Zurich, Pneumology
              Mar 3, 2020

              Genetic Profile in Patients With Aortic Syndrome

              Completed
              • Gene Abnormality
              • Acute Aortic Syndrome
              • genetic analysis
              • Sevilla, Andalucia, Spain
              • +1 more
              Apr 21, 2022