Education Tools to Support Pediatric Survivor Care
This study aims to evaluate the impact of electronic educational materials on adolescent and young adult ("AYA") survivors' knowledge about late effects, perceived benefits, self-efficacy, and intentions to engage in lifelong survivor care.
|Condition or Disease||Intervention/Treatment||Phase|
Despite increased risk for morbidity and mortality related to cancer treatment, over half of young adult survivors of childhood cancer do not engage in the recommended healthcare designed to detect late effects and secondary cancers. There is a scarcity of data on adherence to survivor-focused healthcare, particularly at the critical transition from pediatrics to adult care. In order to improve transition outcomes, the investigators need to create media to educate survivors about need for adherence to adult survivor healthcare.
This study aims to evaluate the impact of electronic educational materials on AYA survivors' knowledge about late effects, perceived benefits, self-efficacy, and intentions to engage in lifelong survivor care.
Arms and Interventions
|Experimental: Electronic educational material|
Participants will complete an online pre-test survey via REDCap. One week after the pre-test survey is completed, AYAs will be sent electronic media via email to review on their own. Study staff will confirm receipt and review of material and schedule a post-test survey to be completed in REDCap two weeks after material is reviewed.
Behavioral: Electronic educational material
Electronic media via email
Primary Outcome Measures
- Change in knowledge [Baseline, 2 weeks post-intervention]
Knowledge will be assessed at baseline and 2 weeks post-intervention, with the Survivor Care Knowledge scale, that includes 15-item multiple-choice quiz to assess participants' knowledge of the content covered in the electronic educational materials previously provided. Total score ranges from 0-15. Higher score is associated with better outcome.
Secondary Outcome Measures
- Change in Champion Benefits Scale for Mammography screening [Baseline, 2 weeks post-intervention]
5-item study adapted Champion Benefits Scale for Mammography Screening. Total score ranges from 5-25. Lower score equals fewer perceived benefits of survivor care
- Change in Champion Barriers Scale for Mammography Screening [Baseline, 2 weeks post-intervention]
11-item study adapted Champion Barriers Scale for Mammography Screening. Total score ranges from 11-55. Lower score equals fewer perceived barriers to survivor care
- Change in Champion Susceptibility Scale for Mammography Screening [Baseline, 2 weeks post-intervention]
3-item study adapted Champion Susceptibility Scale for Mammography Screening. Total score ranges from 3-15. Lower score equals less susceptibility to late effects of treatment
- Change in Intentions for survivor care [Baseline, 2 weeks post-intervention]
2-item study adapted Ajzen's Theory of Planned Behavior- Intentions. Total score ranges from 2-14. Lower score equals greater intention to engage in long-term follow-up care
- Change in Perceived Health Competence Scale (PHCS) [Baseline, 2 weeks post-intervention]
8-item Perceived Health Competence Scale (PHCS). total score ranges from 8-40. Lower score equals lower perceived health competence
Patients must be 18-25 years of age,
Diagnosed with cancer at ≤ 18 years of age,
≥ 2 years since the last cancer treatment,
seen at least once in the Aflac CSP in the past 2 years or transitioned out of the Aflac CSP to adult survivor care since 2013.
Patients and/or parents will be excluded from participation in the study if the participant is non-English speaking.
Young adult survivors who are cognitively impaired and unable to complete the questionnaires.
Participants that do not consent to the recording of their interviews.
Contacts and Locations
|1||Children's Healthcare of Atlanta||Atlanta||Georgia||United States||30322|
Sponsors and Collaborators
- Emory University
- Principal Investigator: Jordan Marchak, PhD, Emory University
Study Documents (Full-Text)None provided.