Perception Prognosis, Goals of Treatment, and Communication
Study Details
Study Description
Brief Summary
The purpose of this research study is to assess what the participant understands about their illness, prognosis, the goals of the cancer treatment and their communication with their oncology providers. This study will help us to figure out how the investigators can improve how other patients understand their illness and goals of treatment and help us improve communication with their doctors. This research is being done because there is not a lot of information on how much patients understand about their illness and prognosis.
Condition or Disease | Intervention/Treatment | Phase |
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Detailed Description
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Participants will be asked to answer a few basic questions regarding race, ethnicity, religion, relationship status, education, income, and living situation.
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They will then be asked to complete a questionnaire which contains questions about their mood, spirituality, quality of life and their understanding of their treatment and prognosis and their communication with their oncologist. They will complete these questionnaires in the clinic or infusion room on one of their regularly scheduled visit.
Study Design
Outcome Measures
Primary Outcome Measures
- Completion of surveys [1 year]
Secondary Outcome Measures
- Patients perceptions of prognosis, goals of care, and communication with providers [1 year]
- Quality of end of life care [1 year]
- Survival [1 year]
Eligibility Criteria
Criteria
Inclusion Criteria:
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Confirmed new diagnosis of advanced gastric, esophageal, pancreatic, and hepatobiliary cancer, not being treated with curative intent.
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Planning to receive chemotherapy at Massachusetts General Hospital
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Ability to read and respond to questions in English.
Exclusion Criteria:
- Prior chemotherapy for current stage of disease.
Contacts and Locations
Locations
Site | City | State | Country | Postal Code | |
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1 | Massachusetts General Hospital | Boston | Massachusetts | United States | 02114 |
Sponsors and Collaborators
- Massachusetts General Hospital
Investigators
- Principal Investigator: Jennifer Temel, MD, Massachusetts General Hospital
Study Documents (Full-Text)
None provided.More Information
Publications
None provided.- 10-219