EQuaViSE: Quality of Life and Quality of Sleep Studies in Children With Home Care Ventilation in the West of France
Home ventilation in children, invasive or non invasiv,e is an interesting treatment for different disease which cause chronic respiratory impairement. The aim of this treatment is to support alveolar hypoventilation. Concerned diseases are : neuro-muscular disease, upper airways pathologies, whest wall or lung pathologies, central control ventilation disease. Prevalence of home children ventilation is in augmentation in France. The last national study in 2021 about infants show a prevalence of 9.3/100 000. Advantages with home children ventilation in addition of improvement of survey, we can observe improvement of quality of life and improvement of the quality of their sleep. Quality of life is a thematic less studying. Last studies show an impairment of quality of life in all thematics compare to children with no disease but also with infants whith chronic diseases. This study were about few numbers of patients. The aim of our study is to evaluate the quality of life and the quality of sleep in children with home ventilation to complete the actual littérature to improve the respiratory care of this population.
Arms and Interventions
|Experimental: Children with home ventilation
Other: Quality of life and sleep questionnaire
Evaluation of quality of life and quality of sleep by questionnaires
Primary Outcome Measures
- Quality of life in children with home care ventilation [30 months]
The quality of life of this population is assessed using the generic PedsQL 4.0 score. The questions are classified according to different categories regardless of age: physical capacity, emotional functioning, social relationships and schooling, or for children under 2 years old, relationship life and cognitive functioning. The evaluation relates to the past month. The questionnaire presents different questions depending on the age group
Child aged 6 months to 17 years treated with non-invasive ventilation at home for at least 1 month
Follow-up in one of the five centers participating in the study (Angers, Nantes, Le Mans, Rennes and Brest)
Informed consent form signed by both parents, or holder of parental authority, for the participation of their child
To be affiliated or beneficiary of social security
Parents with poor command of the French language, implying not being able to complete the various questionnaires
Refusal of the child to participate in the study
Contacts and Locations
LocationsNo locations specified.
Sponsors and Collaborators
- University Hospital, Angers
Study Documents (Full-Text)None provided.