Music Therapy Intervention to Reduce Caregiver Distress at the End of Life
Study Details
Study Description
Brief Summary
This is a study to assess the feasibility and acceptability of implementing a music therapy intervention for caregivers of hospitalized patients who are referred to inpatient hospice.
Condition or Disease | Intervention/Treatment | Phase |
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N/A |
Detailed Description
Caregivers are at high risk for stress, poor quality of life (QOL), and burnout. As a patient nears death, common themes for caregivers include anxiety and emotional distress from impending death, anticipatory grief, and acceptance of loss, which negatively impact the caregiver QOL. Investigators propose to conduct a pilot project to investigate music therapy impact on caregiver distress for caregivers of imminently dying hospitalized patients referred to hospice. Upon enrollment, caregivers will be provided a music therapy intervention with legacy-building components, and will be asked to complete 3 brief questionnaires on distress and quality of life before and after the music therapy to assess their response to the intervention. The overall aim is to reduce caregiver distress and optimize QOL.
Study Design
Arms and Interventions
Arm | Intervention/Treatment |
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Experimental: Music Therapy 1 music therapy session, lasting approximately 45 min-1 hr |
Other: Music Therapy
Music therapy is tailored to subject preference. Examples are active music-making, supportive listening, and includes opportunities for legacy building to decrease caregiver distress and promote self-care.
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Outcome Measures
Primary Outcome Measures
- Pearlin role overload measure (ROM) [Baseline to 6 months]
4-item self-administered measure of caregiver stress
Secondary Outcome Measures
- Linear Analogue Self-Assessment (LASA) [Baseline to 6 months]
10-item self-report of general measures of quality of life (QOL)
- Patient Health Questionnaire for Depression and Anxiety (PHQ-4) [Baseline to 6 months]
4-item self-administered screening tool that combined two validated two-item screeners for depression and anxiety
- Music Therapy Program Survey [Up to 72 hours after intervention]
Survey to assess satisfaction regarding the therapy service provided
Eligibility Criteria
Criteria
Inclusion Criteria:
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Age > 18 years
-
Self-identified caregiver
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English-speaking
Exclusion Criteria:
- Unable to provide consent
Contacts and Locations
Locations
Site | City | State | Country | Postal Code | |
---|---|---|---|---|---|
1 | Mayo Clinic | Rochester | Minnesota | United States | 55905 |
Sponsors and Collaborators
- Mayo Clinic
Investigators
- Principal Investigator: Maria Lapid, MD, Mayo Clinic
Study Documents (Full-Text)
None provided.More Information
Additional Information:
Publications
None provided.- 17-005811