City

Copenhagen (2)

Bologna (1)

Newcastle Upon Tyne (1)

Condition

Bethlem Myopathy (4)

BTHLM1 (1)

Bethlem Myopathy 1, Autosomal Recessive (1)

UCMD (1)

Ullrich Congenital Muscular Dystrophy (1)

Ullrich Congenital Muscular Dystrophy 1, Autosomal Dominant (1)

Ullrich Congenital Muscular Dystrophy 1, Autosomal Recessive (1)

Ullrich Congenital Muscular Dystrophy 1, Digenic, Col6A1/Col6A2 (1)

Ullrich Disease (1)

Overall Status

Completed (2)

Unknown status (2)

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Phase

n/a (2)

phase 2 (1)

Sponsor

Istituto Ortopedico Rizzoli (1)

Newcastle-upon-Tyne Hospitals NHS Trust (1)

Rigshospitalet, Denmark (1)

Ruth Salim (1)

Collaborator

Intervention

low protein diet (1)

moderate-intensity training (1)

observeational (1)

patient registry (1)

Study Documents

Intervention Type

other (3)

behavioral (1)

Funder Type

Other (4)

Study Type

Interventional (3)

Observational [Patient Registry] (1)

bethlem myopathy

Showing 1 - 4 of 4

Trials per page:

STUDY

CONDITIONS

INTERVENTIONS

LOCATIONS

Bethlem Myopathy, Ullrich Congenital Muscular Dystrophy 1, Digenic, Col6A1/Col6A2, Ullrich Congenital Muscular Dystrophy 1,

Unknown status

Bethlem Myopathy
+6 more

Patient Registry

Newcastle Upon Tyne, United Kingdom

Newcastle University

Aug 11, 2020

Bethlem Myopathy, Ullrich Disease Trial in Copenhagen (Observeational)

Unknown status

Bethlem Myopathy
Ullrich Disease

Observeational

Copenhagen, Østerbro, Denmark

Copenhagen Neuromuscular Center

Oct 8, 2018

Bethlem Myopathy, Ullrich Congenital Muscular Dystrophy Trial in Bologna (Low protein diet)

Completed

Bethlem Myopathy
Ullrich Congenital Muscular Dystrophy

Low protein diet

Bologna, Italy

Istituto Ortopedico Rizzoli

Oct 28, 2016

Bethlem Myopathy Trial in Copenhagen (Moderate-intensity training)

Completed

Bethlem Myopathy

Moderate-intensity training

Copenhagen, Denmark

Rigshospitalet, Neuromuscular Research Unit, section 3342

Apr 4, 2016