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neurofibromatosis

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STUDY
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LAST UPDATED

Advanced Data Analytics in Genetic Conditions

Not yet recruiting
  • Neurofibromatosis
  • +2 more
    • Bethesda, Maryland
      National Institutes of Health Clinical Center
    Feb 2, 2023

    Natural History Study of Patients With Neurofibromatosis Type 2

    Recruiting
    • Neurofibromatosis
      • Bethesda, Maryland
        National Institutes of Health Clinical Center
      Jan 25, 2023

      NF1, Neurofibromatosis, Plexiform Neurofibromas Trial in United States (Cabozantinib)

      Active, not recruiting
      • NF1
      • +2 more
      • Los Angeles, California
      • +11 more
      Jan 13, 2023

      Neurofibromatosis, MPNST Trial run by the National Cancer Institute (NCI) (MRI, FDG-PET/CT scans, [18F]-FLT-PET/CT scans)

      Completed
      • Neurofibromatosis
      • MPNST
      • MRI, FDG-PET/CT scans
      • [18F]-FLT-PET/CT scans
      • Bethesda, Maryland
        National Institutes of Health Clinical Center, 9000 Rockville Pi
      Aug 24, 2022

      Validating Pain Scales in Children and Young Adults

      Recruiting
      • Sickle Cell Disease
      • +3 more
        • Bethesda, Maryland
          National Institutes of Health Clinical Center, 9000 Rockville Pi
        Aug 24, 2022

        GROWing Up With Rare GENEtic Syndromes

        Recruiting
        • Prader-Willi Syndrome
        • +32 more
        • Retrospective file studies
        • Rotterdam, Zuid-Holland, Netherlands
          Erasmus Medical Center
        Jul 3, 2020

        Neurofibromatosis Trial run by the NCI (ACT Workshop)

        Completed
        • Neurofibromatosis
        • ACT Workshop
        • Bethesda, Maryland
          National Institutes of Health Clinical Center, 9000 Rockville Pi
        Sep 27, 2019

        Neurofibromatosis, NF1, Plexiform Neurofibromas Trial in Indianapolis (Sutent®/Sunitinib)

        Terminated
        Has Results
        • Neurofibromatosis
        • +2 more
        • Indianapolis, Indiana
          Riley Hospital for Children at IU Health
        Feb 14, 2018

        Neurofibromatosis, Neurofibromas Trial in Indianapolis (Gleevec)

        Completed
        Has Results
        • Neurofibromatosis
        • Neurofibromas
        • Indianapolis, Indiana
          Riley Hospital for Children
        Jun 2, 2017

        Neurofibromatosis, NF1, Neurofibromas Trial in Indianapolis (Tasigna)

        Completed
        Has Results
        • Neurofibromatosis
        • +2 more
        • Indianapolis, Indiana
          Riley Hospital for Children
        Apr 11, 2017

        Psychosocial Factors, Health Literacy, Quality of Life and

        Completed
        • Neurofibromatosis
        • Questionnaires
        • Boston, Massachusetts
          Massachusetts General Hospital
        Apr 2, 2017

        Neurofibromatosis, Neurofibromatosis I, Neurofibromatosis 2 Trial in Boston (The Relaxation Response Resiliency Program (3RP)

        Completed
        • Neurofibromatosis
        • +3 more
        • The Relaxation Response Resiliency Program (3RP) via Skype
        • Boston, Massachusetts
          Massachusetts General Hospital
        Jun 21, 2016

        Neurofibromatosis Trial in Indianapolis (Gleevec)

        Completed
        Has Results
        • Neurofibromatosis
        • Indianapolis, Indiana
          Indiana University
        Apr 5, 2016

        Quality of Friendships in Children With Neurofibromatosis

        Completed
        • Neurofibromatosis
        • Questionnaire
        • Houston, Texas
          U.T.M.D. Anderson Cancer Center
        Jul 31, 2012

        Neurofibromatosis Trial (Pirfenidone)

        Completed
        • Neurofibromatosis
        • (no location specified)
        Mar 15, 2012