Cystic Fibrosis Foundation National Patient Registry
Showing 1 - 25 of >10,000
Health Outcomes of Parents With Cystic Fibrosis
Not yet recruiting
- Cystic Fibrosis
- Parenthood Status
- Parental Status
-
Denver, Colorado
- +6 more
Apr 24, 2023
Cystic Fibrosis, Contraception, Physician-Patient Relations Trial in Pittsburgh (MyVoice:CF)
Recruiting
- Cystic Fibrosis
- +3 more
- MyVoice:CF
-
Pittsburgh, PennsylvaniaUniversity of Pittsburgh
Dec 6, 2022
Effectiveness of CFTR Modulators According to Co-therapy
Not yet recruiting
- Cystic Fibrosis
- Discontinuation of respiratory co-therapy (azithromycin, RhDNase, or inhaled antibiotics)
- (no location specified)
Dec 15, 2022
Quantitation and Spatial Registration of Airways Dysfunction
Recruiting
- Cystic Fibrosis
- Ventilatory Defect
- 19F MRI
-
Chapel Hill, North CarolinaUniveristy of North Carolina at Chapel Hill
Sep 27, 2023
19F MRI in Healthy Children and Mild Cystic Fibrosis Lung
Not yet recruiting
- Cystic Fibrosis in Children
- 19F MRI
-
Chapel Hill, North CarolinaUniveristy of North Carolina at Chapel Hill
Sep 27, 2023
Pulmonary Function Trial in Beijing
Recruiting
- Pulmonary Function
-
Beijing, Beijing, ChinaPeking Union Medical College Hospital
Mar 13, 2022
Prospective Healthcare-Associated Links in Transmission of
Enrolling by invitation
- Cystic Fibrosis
- Nontuberculous Mycobacterial Pulmonary Infection
-
Denver, ColoradoNational Jewish Health
Jan 6, 2023
Bacterial Gene Profiling to Predict Antibiotic Resistance During
Recruiting
- Cystic Fibrosis
-
Denver, ColoradoNational Jewish Health
Sep 28, 2022
Cystic Fibrosis Trial in Seattle (Investigator-designed lung transplant education resource (Research Intervention), Publicly
Completed
- Cystic Fibrosis
- Investigator-designed lung transplant education resource (Research Intervention)
- Publicly available transplant education resource (Attention Control)
-
Seattle, WashingtonUniversity of Washington
Nov 15, 2022
Relief Of Digestive Symptoms In Cystic Fibrosis: CARDS-CF
Recruiting
- Cystic Fibrosis
- +5 more
- Focus group
- +3 more
-
Nottingham, United KingdomNottingham University Hospitals NHS Trust
Jul 7, 2022
Chronic Kidney Disease, Dialysis, Kidney Transplant Trial in Danville (Observational study - registry)
Recruiting
- Chronic Kidney Disease
- +3 more
- Observational study - registry
-
Danville, PennsylvaniaGeisinger Clinic
Aug 9, 2022
Healthcare-associated Links in Transmission of Nontuberculous
Recruiting
- Cystic Fibrosis
- Nontuberculous Mycobacterium Infection
- Epidemiologic investigation
-
Denver, ColoradoNational Jewish Health
Apr 6, 2022
Prospective Study of Pregnancy in Women With Cystic Fibrosis
Recruiting
- Pregnancy Related
- Cystic Fibrosis
-
Birmingham, Alabama
- +39 more
Jan 26, 2023
Paroxysmal Nocturnal Hemoglobinuria Trial run by the Aplastic Anemia and MDS International Foundation
Recruiting
- Paroxysmal Nocturnal Hemoglobinuria
-
Bethesda, MarylandAplastic Anemia and MDS International Foundation
Feb 23, 2023
Longitudinal Effects of CFTR Modulator Drugs
Active, not recruiting
- Cystic Fibrosis
-
Denver, ColoradoNational Jewish Health
Sep 28, 2022
Nontuberculous Mycobacterium Infection Trial in United States (Gallium nitrate)
Recruiting
- Nontuberculous Mycobacterium Infection
- Gallium nitrate
-
Birmingham, Alabama
- +8 more
Jan 10, 2023
Interstitial Lung Disease (ILD), Idiopathic Pulmonary Fibrosis (IPF) Trial in United States
Active, not recruiting
- Interstitial Lung Disease (ILD)
- Idiopathic Pulmonary Fibrosis (IPF)
-
Birmingham, Alabama
- +41 more
Aug 12, 2022
Sweat Chloride and Their Association With Clinical Outcomes
Active, not recruiting
- Cystic Fibrosis
-
Birmingham, Alabama
- +51 more
Jun 16, 2022
Colorectal Cancer Screening in Cystic Fibrosis
Recruiting
- Cystic Fibrosis
- +2 more
- Stool tests
-
Los Angeles, California
- +24 more
Jan 26, 2023
Cystic Fibrosis Trial in Denver, Augusta (Sildenafil 40mg oral capsule, Placebo Oral capsule)
Recruiting
- Cystic Fibrosis
- Sildenafil 40mg oral capsule
- Placebo Oral capsule
-
Denver, Colorado
- +1 more
Aug 29, 2022
Adenine Phosphoribosyltransferase Deficiency, AH Amyloidosis, AHL Amyloidosis Trial in Bristol
Recruiting
- Adenine Phosphoribosyltransferase Deficiency
- +83 more
-
Bristol, South West, United KingdomZoe Plummer
Sep 26, 2023
Cystic Fibrosis Trial in United States (Tele-coaching)
Active, not recruiting
- Cystic Fibrosis
- Tele-coaching
-
Palo Alto, California
- +5 more
Mar 26, 2022
Rare Kidney Stone Consortium Patient Registry
Recruiting
- Primary Hyperoxaluria
- +3 more
-
Rochester, Minnesota
- +3 more
Aug 19, 2022
Cystic Fibrosis, Chronic Disease Trial in United States (coopeRATE Prompt)
Completed
- Cystic Fibrosis
- Chronic Disease
- coopeRATE Prompt
-
Denver, Colorado
- +3 more
Nov 23, 2021