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LINCL

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STUDY
CONDITIONS
INTERVENTIONS
LOCATIONS

Batten Disease, Late-Infantile Neuronal Ceroid Lipofuscinosis Trial in New York (AAVrh.10CUhCLN2 vector 9.0x10^11 genome copies,

Completed
  • Batten Disease
  • Late-Infantile Neuronal Ceroid Lipofuscinosis
  • AAVrh.10CUhCLN2 vector 9.0x10^11 genome copies
  • AAVrh.10CUhCLN2 vector 2.85x10^11 genome copies
  • New York, New York
    Weill Cornell Medical College
Jan 31, 2021

Late Infantile Neuronal Ceroid Lipofuscinosis, Batten Disease Trial in New York (AAVrh.10CUCLN2)

Completed
  • Late Infantile Neuronal Ceroid Lipofuscinosis
  • Batten Disease
  • AAVrh.10CUCLN2
  • New York, New York
    Weill Cornell Medical College
Aug 28, 2020

Late Infantile Neuronal Ceroid Lipofuscinosis

Completed
  • Batten Disease
  • Late Infantile Neuronal Ceroid Lipofuscinosis
    • New York, New York
      Weill Cornell Medicine
    Jul 28, 2020

    Batten Disease, Late Infantile Neuronal Ceroid Lipofuscinosis Trial in New York (AAV2CUhCLN2 (3x10^12 particle units))

    Completed
    • Batten Disease
    • Late Infantile Neuronal Ceroid Lipofuscinosis
    • AAV2CUhCLN2 (3x10^12 particle units)
    • New York, New York
      New York Presbyterian Hospital - Weill Medical College of Cornel
    Jul 22, 2020

    Neuronal Ceroid Lipofuscinosis Type 2 Trial in Columbus (Cerliponase Alfa)

    Enrolling by invitation
    • Neuronal Ceroid Lipofuscinosis Type 2
    • Cerliponase Alfa
    • Columbus, Ohio
      Nationwide Children's Hospital
    Nov 29, 2021

    Jansky-Bielschowsky Disease, Batten Disease, Late-Infantile Neuronal Ceroid Lipofuscinosis Type 2 Trial in Worldwide (BMN 190,

    Completed
    • Jansky-Bielschowsky Disease
    • +4 more
    • BMN 190
    • Intracerebroventricular (ICV) access device
    • Columbus, Ohio
    • +3 more
    Jul 28, 2022

    Neuronal Ceroid Lipofuscinosis, Batten Disease, CLN1 Disease Trial in Hamburg (Natural History)

    Recruiting
    • Neuronal Ceroid Lipofuscinosis
    • +14 more
    • Natural History
    • Hamburg, Germany
      University Medical Center Hamburg-Eppendorf
    Oct 22, 2021

    Jansky-Bielschowsky Disease, Batten Disease, Late-Infantile Neuronal Ceroid Lipofuscinosis Type 2 Trial in Worldwide (BMN 190)

    Completed
    • Jansky-Bielschowsky Disease
    • +3 more
    • BMN 190
    • Columbus, Ohio
    • +4 more
    Mar 6, 2019

    Genotype - Phenotype Correlations of LINCL

    Completed
    • Batten Disease
    • Late-Infantile Neuronal Ceroid Lipfuscinosis
      • (no location specified)
      Jul 28, 2016

      Collection of Cerebrospinal Fluid in Healthy Children

      Terminated
      • Late Infantile Neuronal Ceroid Lipofuscinosis
      • Batten Disease
      • Group 1
      • New York, New York
        Weill Cornell Medical College / New York Presbyterian Hospital
      May 3, 2016

      Neuronal Ceroid Lipofuscinosis Trial in Portland (Surgery to implant human CNS stem cells (HuCNS-SC), Medication to suppress the

      Completed
      • Neuronal Ceroid Lipofuscinosis
      • Surgery to implant human CNS stem cells (HuCNS-SC)
      • Medication to suppress the immune system
      • Portland, Oregon
        Oregon Health and Science University
      Jan 13, 2015

      Neuronal Ceroid Lipofuscinosis Trial in Portland (HuCNS-SC)

      Withdrawn
      • Neuronal Ceroid Lipofuscinosis
      • HuCNS-SC
      • Portland, Oregon
        Oregon Health and Science University
      Jan 13, 2015