Achieving Equity in Genomic Testing for Breast Cancer Through Partner-Led Strategies and Policies
Study Details
Study Description
Brief Summary
The purpose of this study is to identify the barriers, and the extent of said barriers, to genomic testing for breast cancer patients among low-income and minority populations, particularly throughout Northern California. We have created a survey that is available online for any patient with cancer to fill out voluntarily regarding their experiences to date. The survey is available at: https://stanforduniversity.qualtrics.com/jfe/form/SV_7VElf8oesWcB3bE
| Condition or Disease | Intervention/Treatment | Phase |
|---|---|---|
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Detailed Description
The study has two main data-collecting phases. In phase 1, we will engage multilevel stakeholders to respond to a survey assessing experience with and perceptions of genomic testing and its accessibility for patients with breast cancer in California. In phase 2, selected and interested survey participants who voluntarily provide their contact information on the survey will be asked to participate in an in-depth 1:1 semi-structured interview to explore disparities in genomic testing for breast cancer more closely. We will then utilize our findings from both phases to present aggregate findings to an Expert Panel and Community Advisory Board and work together to develop policy recommendations. The policy recommendations will then be presented to policy makers, with the aim of identifying sustainable solutions that address breast cancer treatment and outcome disparities throughout Northern California.
Study Design
Arms and Interventions
| Arm | Intervention/Treatment |
|---|---|
| Patients and Caregivers We will survey 100 patients and 50 caregivers. |
Outcome Measures
Primary Outcome Measures
- Number of participants who fill out the survey and participate in the semi-structured interviews. [ Time Frame: 12 Months ] [12 Months]
We will track the number of participants who fill out the survey for the 12 month duration of the study and the number of participants who participate in the semi-structured telephone interviews.
Eligibility Criteria
Criteria
Inclusion Criteria:
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The patients must be 18 years or older.
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Patients who opt in to complete the survey.
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Patients must have the capacity to verbally consent for the interview.
Exclusion Criteria:
- Patients who under the age of 18 years old.
Contacts and Locations
Locations
| Site | City | State | Country | Postal Code | |
|---|---|---|---|---|---|
| 1 | Stanford University School of Medicine | Stanford | California | United States | 94305 |
Sponsors and Collaborators
- Stanford University
- The Latino Cancer Institute
Investigators
None specified.Study Documents (Full-Text)
None provided.More Information
Publications
None provided.- 68742