Advance Care Planning Among Older People From Moroccon Origin in Belgium

Sponsor

Universitair Ziekenhuis Brussel (Other)

Overall Status

Recruiting

CT.gov ID

NCT04335214

Collaborator

(none)

Enrollment

Location

Arm

Anticipated Duration (Months)

0.9

Patients Per Site Per Month

Study Details

Study Description

Brief Summary

Advance care planning (ACP) enables individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Research has shown that most Western patients express the need about what ACP entails. Ethnicity creates an important cultural impact on how people look at life and death, so that there is an influence on making decisions about end-of-life care.

The moroccan ethnic group is one of the largest visible non-Western minority groups in Western countries. Studies on how ACP is perceived among patients from moroccon origin are lacking. The objective of this study is exploring the knowledge, experiences, point of views, preferences, attitudes, facilitators and barriers concerning advance care planning of older people from moroccan origin in Belgium. Semi-structured interviews (in the native moroccan/arabic language) will be used.

Condition or Disease	Intervention/Treatment	Phase
Advance Care Planning Ethnic Minorities Moroccans Advance Medical Directives Muslims Living Will	Other: one to one interview	N/A

Study Design

Study Type:

Interventional

Anticipated Enrollment :

30 participants

Allocation:

N/A

Intervention Model:

Single Group Assignment

Intervention Model Description:

one to one interviewsone to one interviews

Masking:

None (Open Label)

Primary Purpose:

Other

Official Title:

Advance Care Planning Among Older People From Moroccon Origin in Belgium

Actual Study Start Date :

Apr 1, 2020

Anticipated Primary Completion Date :

Dec 1, 2022

Anticipated Study Completion Date :

Mar 3, 2023

Arms and Interventions

Arm	Intervention/Treatment
Other: Interview One to one interview with older people from moroccon origin in Belgium	Other: one to one interview one to one interviews with older people from moroccon origin in Belgium

Arm

Intervention/Treatment

Other: Interview

One to one interview with older people from moroccon origin in Belgium

Other: one to one interview

one to one interviews with older people from moroccon origin in Belgium

Outcome Measures

Primary Outcome Measures

Knowledge, experiences, views, preferences, barriers and facilitators about advance care planning from older people from moroccon origin in Belgium [18 months]
This is a qualitative study. We've developed a semi-structured interview guide with the folowing questions: What do you know in relation to advance care planning? Have you yourself ever thought or looked up about your future healthcare? What do you think about advance care planning now for future? What are the advantages and disadvantages? In your opinion, what makes it easier or harder to talk about advance care planning?

Eligibility Criteria

Criteria

Ages Eligible for Study:

65 Years and Older

Sexes Eligible for Study:

All

Accepts Healthy Volunteers:

Inclusion Criteria:

People with Moroccan origin who live in Belgium and are older than 65 years and who have also given informed consent to participate in this qualitative interview study

Exclusion Criteria:

Patients who are terminal ill which means having a life-limiting disease with irreversible decline and expected survival in terms of months or less. (41)
people who have cognitive impairment

Contacts and Locations

Locations

	Site	City	State	Country	Postal Code
1	Faculteit Geneeskunde en Farmacie	Brussels		Belgium	1090

Sponsors and Collaborators

Universitair Ziekenhuis Brussel

Investigators

Principal Investigator: Hakki Demirkapu, Vrije Universiteit Brussel

Study Documents (Full-Text)

None provided.

More Information

Publications

None provided.

Responsible Party:

Universitair Ziekenhuis Brussel

ClinicalTrials.gov Identifier:

NCT04335214

Other Study ID Numbers:

B670201942542

First Posted:

Apr 6, 2020

Last Update Posted:

Aug 17, 2022

Last Verified:

May 1, 2022

Individual Participant Data (IPD) Sharing Statement:

Plan to Share IPD:

Studies a U.S. FDA-regulated Drug Product:

Studies a U.S. FDA-regulated Device Product:

Study Results

No Results Posted as of Aug 17, 2022