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Interviews With Older People From Turkish Origin in Belgium About Advance Care Planning

Sponsor
Universitair Ziekenhuis Brussel (Other)
Overall Status
Recruiting
CT.gov ID
NCT03930823
Collaborator
(none)
30
Enrollment
1
Location
1
Arm
48.4
Anticipated Duration (Months)
0.6
Patients Per Site Per Month

Study Details

Study Description

Brief Summary

Advance care planning (ACP) enables individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Research has shown that most Western patients express the need about what ACP entails.

Ethnicity creates an important cultural impact on how people look at life and death, so that there is an influence on making decisions about end-of-life care. The Turkish ethnic group is one of the largest visible non-Western minority groups in Western countries. Studies on how ACP is perceived among patients from Turkish origin are lacking.

The objective of this study is exploring the knowledge, experiences, point of views, preferences, attitudes, facilitators and barriers concerning advance care planning of older people from Turkish origin in Belgium. Semi-structured interviews (in the native Turkish language) will be used.

Condition or Disease Intervention/Treatment Phase
  • Other: Interview
 N/A

Study Design

Study Type:
Interventional
Anticipated Enrollment :
30 participants
Allocation:
N/A
Intervention Model:
Single Group Assignment
Intervention Model Description:
One to one InterviewsOne to one Interviews
Masking:
None (Open Label)
Primary Purpose:
Other
Official Title:
Advance Care Planning Among Older People From Turkish Origin in Belgium: An Exploratory Interview Study
Actual Study Start Date :
Mar 18, 2019
Anticipated Primary Completion Date :
Dec 31, 2022
Anticipated Study Completion Date :
Mar 31, 2023

Arms and Interventions

Arm Intervention/Treatment
Other: Interview

One to one interviews with older people from Turkish origin in Belgium

Other: Interview
One to one interview

Outcome Measures

Primary Outcome Measures

  1. Knowledge about advance care planning from older people from Turkish origin in Belgium [9 months]

    This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you know in relation to advance care planning?

  2. Experiences about advance care planning from older people from Turkish origin in Belgium [9 months]

    This is a qualitative study. We developed a semi-structured interview guide with the following questions:Have you yourself ever thought about your future healthcare? Have you yourself ever looked up something about that?

  3. Views/preferences about advance care planning from older people from Turkish origin in Belgium [9 months]

    This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you think about discussing advance care planning now for the future? Even if you do not have such a serious illness at the moment, what are the advantages and disadvantages about discussing your wishes for the future, now?

  4. Attitudes about advance care planning from older people from Turkish origin in Belgium [9 months]

    This is a qualitative study. We developed a semi-structured interview guide with the following questions: Before you got severe illness, do you wish to discuss to someone your future wishes in advance? Why? Do you wish to give authority on your behalf to someone? Why?

  5. Barriers and facilitators for advance care planning from older people from Turkish origin in Belgium [9 months]

    This is a qualitative study. We developed a semi-structured interview guide with the following questions: In your opinion, what makes it easier or what would make it easier to talk about advance care planning? In your opinion, what makes it harder to talk about advance care planning?

Eligibility Criteria

Criteria

Ages Eligible for Study:
65 Years and Older
Sexes Eligible for Study:
All
Accepts Healthy Volunteers:
No
Inclusion Criteria:
People:

  • with Turkish origin who live in Belgium and are older than 65 years

  • who have also given informed consent to participate in this qualitative interview study

Exclusion Criteria:

  • Patients who are terminal ill which means having a life-limiting disease with irreversible decline and expected survival in terms of months or less. (41)

  • Having cognitive impairment

Contacts and Locations

Locations

Site City State Country Postal Code
1 Faculteit Geneeskunde en Farmacie Brussels Belgium 1090

Sponsors and Collaborators

  • Universitair Ziekenhuis Brussel

Investigators

  • Principal Investigator: Hakki Demirkapu, MD, Vrije Universiteit Brussel

Study Documents (Full-Text)

None provided.

More Information

Publications

None provided.
Responsible Party:
Universitair Ziekenhuis Brussel
ClinicalTrials.gov Identifier:
NCT03930823
Other Study ID Numbers:
  • ACP-TR-1-2018
First Posted:
Apr 29, 2019
Last Update Posted:
May 19, 2022
Last Verified:
May 1, 2022
Individual Participant Data (IPD) Sharing Statement:
No
Plan to Share IPD:
No
Studies a U.S. FDA-regulated Drug Product:
No
Studies a U.S. FDA-regulated Device Product:
No

Study Results

No Results Posted as of May 19, 2022