APN: Trial of Autism Parent Navigator Program
Study Details
Study Description
Brief Summary
To address the dual needs of parents for support in navigating Autistic Spectrum Disorder (ASD) services and maintaining positive family functioning, the investigators propose to test Autism Parent Navigators (APN), an innovative in-home, peer support model for parents with a young child recently diagnosed with ASD.
| Condition or Disease | Intervention/Treatment | Phase |
|---|---|---|
|
N/A |
Study Design
Arms and Interventions
| Arm | Intervention/Treatment |
|---|---|
| Experimental: Autism Parent Navigators Intervention Autism Parent Navigators Intervention is a manualized, in-home, peer support model for parents with a young child recently diagnosed with ASD. |
Behavioral: Autism Parent Navigators
The Autism Parent Navigator program consists of six sessions delivered to parents in the home, supporting adjustment to ASD, accessing services, and coparenting support.
|
| Active Comparator: Peer mentoring Peer mentors will offer an equivalent number of in-home or telephone visits for families, providing non-manualized peer support. |
Behavioral: Peer mentoring
Six in-home or telephone sessions, depending on family uptake, providing non-manualized general support as usual from parent peer mentors regarding adjustment to ASD.
|
Outcome Measures
Primary Outcome Measures
- Weekly Count of Service Navigation Behaviors [12 month]
Engagement with ASD-related Services
- Parenting Scale (Arnold) [12 month]
Parenting consistency, warmth
- CES-Depression [12 month]
Parent depression
Secondary Outcome Measures
- Coparenting Relationship Scale (Feinberg, Brown, & Kan, 2012) [12 month]
Coparenting Support
- Family Empowerment Scale - FES [12 month]
Parent Efficacy regarding Service Access
- PDD-BI [12 month]
Challenging Child Behaviors: Aggression, Non-compliance
Eligibility Criteria
Criteria
Inclusion Criteria:
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Parents of children who have been newly diagnosed with Autism Spectrum Disorder (ASD).
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The child will be age 2-6 years and been diagnosed with ASD in the past four months.
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The child is the first child in the family to be diagnosed with ASD.
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Parents are not already involved in a parent mentoring relationship.
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Parents are currently involved in a couple relationship, including same-sex partners, dating couples, adoptive parents and step-parent families.
Exclusion Criteria:
None
Contacts and Locations
Locations
| Site | City | State | Country | Postal Code | |
|---|---|---|---|---|---|
| 1 | Family Connections | Columbia | South Carolina | United States | 29204 |
Sponsors and Collaborators
- Penn State University
- University of South Carolina
- Family Connections
Investigators
- Principal Investigator: Mark Feinberg, PhD, Penn State
Study Documents (Full-Text)
None provided.More Information
Publications
None provided.- APN-RT01