Developing and Pilot Testing Culturally Based Educational Videos for Puerto Rican and African American Home Hospice Caregivers
Study Details
Study Description
Brief Summary
The investigators hypothesize that culturally based educational videos for Puerto Rican and African American home hospice caregivers will better inform caregivers in managing symptoms, preparedness, self-efficacy, and competence.
| Condition or Disease | Intervention/Treatment | Phase |
|---|---|---|
|
N/A |
Detailed Description
The clinical trial for this project is a cross-sectional study conducted with VNS Health hospice, Hospicio Toque de Amor, and Hospicio Luz Celeste. Names of Puerto Rican and African American caregivers receiving home hospice care will be referred to the study team by the site leader/hospice leadership at each hospice. Demographic data will be collected from each caregiver participant. Prior to showing participants the culturally tailored videos, a research member will administer a set of Likert style questions developed by the research team around comfort in managing symptom related issues. The same questions will be administered again post video intervention. In addition, the preparedness scale, chronic pain self-efficacy scale, and caregiving competence scale will be administered to participants pre and post video intervention. The PI will not be involved in the administering the intervention for this study. After the culturally tailored videos have been shown to the participant, a research member will also conduct an open-ended interview about content, reactions, attitudes, usefulness and limitations around each video. Interviews will be conducted in either English and/or Spanish.
Study Design
Arms and Interventions
| Arm | Intervention/Treatment |
|---|---|
| Experimental: Hospice Caregivers Culturally tailored educations videos will be administered to participants. |
Behavioral: Caregiver educational videos
The intervention will be culturally tailored education videos for caregivers receiving hospice services.
|
Outcome Measures
Primary Outcome Measures
- Change in caregivers' comfort in managing symptom related issues using a Likert scale [Pre-test and post-test (Day 1)]
1 is extremely uncomfortable and 5 is very comfortable
Secondary Outcome Measures
- Change in Caregiver Preparedness Scale [Pre-test and post-test (Day 1)]
An 8-item scale. Each question ranges from 0 (Not at all prepared) to 4 (Very well prepared). Total score can range from 0 to 32 with higher scores are indicative of feeling better prepared for the caregiving role.
- Change in Caregiving Competence Scale [Pre-test and post-test (Day 1)]
A 4-item scale. Each question ranges from 1 (Not at all competent) to 4 (Very competent)
- Change in Chronic Pain Self-Efficacy Scale [Pre-test and post-test (Day 1)]
A 22-item scale. Each question is rated on a Likert scale between 10 (very uncertain) to 100 (very certain).
- Qualitative feedback on videos [Post-test (Day 1)]
Open ended interview will be conducted to obtain participant feedback around content, attitudes, usefulness and limitations of the videos.
Eligibility Criteria
Criteria
Inclusion Criteria:
-
Family caregivers who identify themselves as Puerto Rican or African American
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English and/or Spanish speaking
-
18 year of age or older
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Currently receiving home hospice services with a patient
Contacts and Locations
Locations
| Site | City | State | Country | Postal Code | |
|---|---|---|---|---|---|
| 1 | VNS Health | New York | New York | United States | 10017 |
| 2 | Hospicio Luz Celeste | Caguas | Puerto Rico | 00725 | |
| 3 | Hospicio Toque De Amor | Manati | Puerto Rico | 00674 |
Sponsors and Collaborators
- Weill Medical College of Cornell University
- National Institute on Aging (NIA)
- VNS Health
Investigators
- Principal Investigator: Veerawat Phongtankuel, MD, Weill Medical College of Cornell University
Study Documents (Full-Text)
None provided.More Information
Publications
None provided.- 22-04024661
- 3K76AG059997-03S1