Body Knowledging Program Chronic Disease Self Care Management Pilot Study.
Study Details
Study Description
Brief Summary
The intervention aims to activate patients' inherent resources and by this, facilitate empowerment, patient activation and self-care management of their chronic disease.
| Condition or Disease | Intervention/Treatment | Phase |
|---|---|---|
|
N/A |
Detailed Description
The intervention aims to activate patients' inherent resources and by this, facilitate empowerment, patient activation, and self-care management of their chronic disease. The subjects will include people 18 years and older that have been diagnosed with a chronic disease. This pilot study will use a mixed-method design. Some of the data will be collected initially, then the intervention will be provided in six sessions through video conferencing as well as facilitated by a researcher on-site with one individual telephone follow-up. Once the sessions are finished both qualitative and quantitative data will be collected and then analyzed.
Study Design
Arms and Interventions
| Arm | Intervention/Treatment |
|---|---|
| Experimental: Body Knowleging Program Pilot Study There will be three groups of 10 participants with a chronic disease that will receive the Body knowledging Program. The intervention aims to activate patients' inherent resources and by this, facilitate empowerment, patient activation, and self-care management of their chronic disease. The subjects will include people 18 years and older that have been diagnosed with a chronic disease. This pilot study will use a mixed-method design. Some of the data will be collected initially, then the intervention will be provided in six sessions through video conferencing as well as facilitated by a researcher on-site with one individual telephone follow-up. Once the sessions are finished both qualitative and quantitative data will be collected and then analyzed. |
Behavioral: Patient activation and empowerment among adults with chronic disease using a person-centered and strength-based self-care management intervention, a pilot study.
The intervention aims to activate patients' inherent resources and by this, facilitate empowerment, patient activation and self-care management of their chronic disease. The subjects will include people 18 years and older that have been diagnosed with a chronic disease. This pilot study will use a mixed method design. Some of the data will be collected initially, then the intervention will be provided in six sessions through video conferencing as well as facilitated by a researcher on site with one individual telephone follow-up. Once the sessions are finished both qualitative and quantitative data will be collected and then analyzed.
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Outcome Measures
Primary Outcome Measures
- The Health Education Impact Questionnaire (heiQ) [15 minutes]
measures eight self-management skills in people with chronic conditions. Possible scores are on a 4 point likert scale. The scale is 1-4. higher score indicates better self-management, with the exception of the emotional wellbeing construct for which scoring is reversed.
- The Brief Illness Perception Questionnaire (B-IPQ) [5 minutes]
assesses the five cognitive illness representations on a five-point Likert scale. The scale is 0-10. A higher score reflects a more threatening view of the illness.
- The Patient Activation Measure (PAM) [10 minutes]
the measure of a person's knowledge, skills, and confidence to manage their own health and well-being on a 0-100 scale the higher score measures indicate higher patient activation.
- The European Quality of Life Questionnaire (EQ5D) [10 minutes]
measures a person's quality of life on a scale 0-100. The higher the score the higher the quality of life.
Eligibility Criteria
Criteria
Inclusion Criteria: ≥18 years of age; Undergoing treatment for chronic illness; Cognitive capacity to participate in group formats; answer questions from questionnaires and Able to read and speak English. -
Exclusion Criteria: Major reduction in cognitive capacity (i.e. major strokes, dementia or other related conditions) or serious mental illness that impacts ability to give consent or limits effective participation within a group discussion as assessed by the PI and RA in consultation following routine study protocols used at the study setting (patients may suffer from mild cognitive impairment but must be able to understand and complete questionnaires and engage in intervention groups); Patients in palliative phases of cancer; Patients in acute medical crisis or in need of intensive care; Patients who attend similar interventions in the same period or within the past 3 months. -
Contacts and Locations
Locations
No locations specified.Sponsors and Collaborators
- Pace University
Investigators
- Principal Investigator: Natalie A Stepanian, Ph.D., Pace University
Study Documents (Full-Text)
None provided.More Information
Publications
None provided.- 1936501-Pace