COPD PPRN: COPD Patient-Powered Research Network

Sponsor

COPD Foundation (Other)

Overall Status

Recruiting

CT.gov ID

NCT02803242

Collaborator

Kaiser Foundation Hospitals, Center for Health Research (Other)

75,000

Enrollment

Location

185

Duration (Months)

405.3

Patients Per Site Per Month

Study Details

Study Description

Brief Summary

The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.

Condition or Disease	Intervention/Treatment	Phase
Chronic Obstructive Pulmonary Disorder Chronic Obstructive Lung Disease Emphysema Chronic Bronchitis	Other: Patient Reported Outcomes

Study Design

Study Type:

Observational [Patient Registry]

Anticipated Enrollment :

75000 participants

Observational Model:

Cohort

Time Perspective:

Other

Official Title:

COPD Patient-Powered Research Network

Study Start Date :

Aug 1, 2014

Anticipated Primary Completion Date :

Jan 1, 2025

Anticipated Study Completion Date :

Jan 1, 2030

Outcome Measures

Primary Outcome Measures

Patient Reported Outcome Measurement Information System-29 (PROMIS-29) [15 years]
COPD Assessment Test (CAT) [15 years]
Modified Medical Research Council (MMRC) Dyspnea Scale [15 years]
Charlson Comorbidity Index (CCI) [15 years]