Consequences of the COVID-19 Lockdown on Health and Well-being of Patients With Parkinson Disease and Post-stroke
Study Details
Study Description
Brief Summary
The study aimed at describing the effects of the COVID-19 social distancing on function, health and well-being of patients with Parkinson's disease or post-stroke, and test the association between the patient activation level and these effects.An anonymous survey was distributed through social media and patient associations.Community-living patients with Parkinson's disease or post-stroke were invited to answer the survey.
| Condition or Disease | Intervention/Treatment | Phase |
|---|---|---|
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Detailed Description
People with chronic diseases like Parkinson's disease or post-stroke rely on routine medical and rehabilitative care to maintain daily function and health. These are important aspects of self-management. However, this was challenged by the social distancing due to COVID-19, which limited participation in regular routines.
The study objectives were: To (1) describe the effects of the COVID-19 social distancing on function, health and well-being of patients with Parkinson's disease or post-stroke, and (2) test the association between the patient activation level and these effects.
Community-living patients with Parkinson's disease or post-stroke were invited to answer an anonymous survey through social media and patient associations. Part 1 included 27 multiple-choice questions regarding current status and changes in function, health, medical care and well-being. Part 2 consisted of the Patient Activation Measure, describing people's knowledge, skill, and confidence in managing their own health.
Study Design
Outcome Measures
Primary Outcome Measures
- Patient Activation Measure (PAM®) [1 hour]
The PAM is a self-reported validated, licensed tool to measure a patient's knowledge, skills and confidence for self-management. The overall score captures the extent to which people feel engaged and confident in taking care of their health condition. It consists of 13 statements rated on a Likert scale according to agreement. Scores are divided into 4 levels, where 1 represents patients who tend to be passive and feel overwhelmed managing their own health, and 4 represents patients who have effectively adopted self-management behaviors. We used a validated licensed Hebrew and version of the PAM supplied by Insignia Health (https://www.insigniahealth.com/products/pam-survey), which holds the copyright to the questionnaire.
- Answers to multiple-choice questions [1 hour]
participants were asked to answer 27 multiple-choice questions regarding status and change in status of mobility, mood (depression, anxiety), tiredness, social support, body weight, physical activity, rehabilitative treatments and disease symptoms
Eligibility Criteria
Criteria
Inclusion Criteria:
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People diagnosed with Parkinson's disease or their caregivers, or people post-stroke or their caregivers
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Live in the community
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If a family member or caregiver completed the survey, we asked them to answer in reference to the patient.
Exclusion Criteria:
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diagnosis of COVID-19
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hospitalization in the last 3 months.
Contacts and Locations
Locations
| Site | City | State | Country | Postal Code | |
|---|---|---|---|---|---|
| 1 | Galit Yogev-Seligmann | Haifa | Please Select... | Israel | 3498838 |
Sponsors and Collaborators
- University of Haifa
Investigators
- Principal Investigator: Galit Yogev-Seligmann, University of Haifa
Study Documents (Full-Text)
None provided.More Information
Publications
None provided.- 203/20