Dementia Care Challenges Among a Sample of Informal Caregivers in Egypt

Sponsor

Assiut University (Other)

Overall Status

Not yet recruiting

CT.gov ID

NCT05572086

Collaborator

(none)

314

Enrollment

Anticipated Duration (Months)

Study Details

Study Description

Brief Summary

Dementia is a widespread incapacitating mental syndrome that carries a significant challenge for healthcare systems, persons with dementia, and their caregivers. The world health organization estimates that there is "more than 55 million persons live with dementia worldwide, and there are nearly 10 million new cases every year"

In Egypt there are many studies had investigated caregiver burden with chronic ill elderly as physical or psychiatric diseases; however, studies focusing on caregiving Patients With Dementia (PWD), especially the psychological aspect, has been raised just few years ago. Some focused on psychiatric comorbidities of care givers, others correlated caregivers' quality of life with dementia staging. Other research groups designed educational programs and psychosocial interventions for training informal caregivers with significant psychological burden reduction at the end of the studies , also another group focused their study on the negative emotions expressed by caregiver towards PWD. Still there are many aspects of caregiving not explored considering the financial burden, lack of formal educational resources, stigma, cultural and religious values related to caregiving.

Condition or Disease	Intervention/Treatment	Phase
Dementia

Detailed Description

our study aims:

To assess challenges of dementia-related knowledge among a sample of dementia informal caregivers
To assess the needs of persons with dementia and their informal caregivers
To assess the burden of caregiving among a sample of dementia informal caregivers
To assess possible culturally related challenges of caregiving among a sample of dementia informal caregivers

The study will be carried out through face-to-face interview, telephone interview, and online survey from community sources, including support groups in social media, memory clinics, outpatient clinics (Geriatric medicine, neurology, or psychiatry), and social support groups of non-governmental organizations.

Study Design

Study Type:

Observational

Anticipated Enrollment :

314 participants

Observational Model:

Case-Only

Time Perspective:

Cross-Sectional

Official Title:

Dementia Care Challenges Among a Sample of Informal Caregivers in Egypt

Anticipated Study Start Date :

Feb 1, 2023

Anticipated Primary Completion Date :

Feb 1, 2024

Anticipated Study Completion Date :

Jun 1, 2024

Outcome Measures

Primary Outcome Measures

Assessment of caregiver burden [one year]
By using Zarit Burden Interview

Eligibility Criteria

Criteria

Ages Eligible for Study:

18 Years to 60 Years

Sexes Eligible for Study:

All

Accepts Healthy Volunteers:

Inclusion Criteria:

Informal Caregivers aged 18 years or older
Informal Caregiver in daily contact for care with the person with dementia for at least one year.

Exclusion Criteria:

Informal caregivers who are unable or unwilling to communicate.
Formal caregivers

Contacts and Locations

Locations

No locations specified.

Sponsors and Collaborators

Assiut University

Investigators

None specified.

Study Documents (Full-Text)

None provided.

More Information

Publications

None provided.

Responsible Party:

Asmaa Hasan, lecturer, Assiut University

ClinicalTrials.gov Identifier:

NCT05572086

Other Study ID Numbers:

Dementia care challenges

First Posted:

Oct 7, 2022

Last Update Posted:

Oct 7, 2022

Last Verified:

Oct 1, 2022

Studies a U.S. FDA-regulated Drug Product:

Studies a U.S. FDA-regulated Device Product:

Additional relevant MeSH terms:

Dementia

Study Results

No Results Posted as of Oct 7, 2022