TRANSITIONS: Improving Care and Community Representation for Adolescents and Young Adults Living With HIV in West Africa
Study Details
Study Description
Brief Summary
Context: HIV-positive young people aged 15 to 24 are a heterogeneous population in terms of gender, age, mode of transmission, sexual orientation and risk-taking. This most vulnerable age group is at greater risk of disruption of medical care and poor compliance, and has greater needs for psychosocial support and differentiated health services. It remains highly invisible in West African countries, both in the definition of care policies and in the allocation of resources and community representation.
Objectives: The overall objective of the project is to contribute to the improvement of retention in care, health and well-being of adolescents and young adults living with HIV (AYAHIV) and to support their integration into the community space.
SO1: Support the operationalisation of the transition of HIV-infected adolescents from paediatrics to adult medical services in a stakeholder inclusive, participatory and responsive approach SO2: Contribute to the empowerment and autonomy of adolescents and young adults living with HIV in the project environment SO3: Contribute to the generation and dissemination of evidence-based information and recommendations on the situation and needs of adolescents and young adults, including key populations, living with HIV
Target: Approximately 67 caregivers∙e∙s ≥ 25 years old, of which 64%F, 30 peer-referent associations of 20-24 years old (ratio F/H= 1:1), 700 AYAHIV ≥ 15 years old, of which 47%F, in paediatrics and 500-600 AYAHIV aged 15-24 years old in adult medicine, of which 41%F, and including AYAHIV associations Summary of activities: Based on the capitalisation and pooling of experiences of partner teams, the project proposes to support the implementation of transition in a pragmatic approach, adapted to the needs of adolescents and inclusive of carers, adolescents and community peers. More globally, it contributes to improving the health, empowerment and autonomy of HIV-positive youth, including key populations, in particular through support to training, structuring and community representation of youth associations, documentation of the conditions of entry into care and their specific needs, including digital health, production and availability of evidence and recommendations in this West African context and advocacy building.
A multidisciplinary and participatory research-action project, carried out by the IRD in Senegal and financed by Sidaction, accompanies the three specific objectives of the project.
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Detailed Description
Context: HIV-positive young people aged 15 to 24 are a heterogeneous population in terms of gender, age, mode of transmission, sexual orientation and risk-taking. This most vulnerable age group is at greater risk of disruption of medical care and poor compliance, and has greater needs for psychosocial support and differentiated health services. It remains highly invisible in West African countries, both in the definition of care policies and in the allocation of resources and community representation.
Objectives: The overall objective of the project is to contribute to the improvement of retention in care, health and well-being of adolescents and young adults living with HIV (AYAHIV) and to support their integration into the community space.
SO1: Support the operationalisation of the transition of HIV-infected adolescents from paediatrics to adult medical services in a stakeholder inclusive, participatory and responsive approach SO2: Contribute to the empowerment and autonomy of adolescents and young adults living with HIV in the project environment SO3: Contribute to the generation and dissemination of evidence-based information and recommendations on the situation and needs of adolescents and young adults, including key populations, living with HIV
Target: Approximately 67 caregivers∙e∙s ≥ 25 years old, of which 64%F, 30 peer-referent associations of 20-24 years old (ratio F/H= 1:1), 700 AYAHIV ≥ 15 years old, of which 47%F, in paediatrics and 500-600 AYAHIV aged 15-24 years old in adult medicine, of which 41%F, and including AYAHIV associations Summary of activities: Based on the capitalisation and pooling of experiences of partner teams, the project proposes to support the implementation of transition in a pragmatic approach, adapted to the needs of adolescents and inclusive of carers, adolescents and community peers. More globally, it contributes to improving the health, empowerment and autonomy of HIV-positive youth, including key populations, in particular through support to training, structuring and community representation of youth associations, documentation of the conditions of entry into care and their specific needs, including digital health, production and availability of evidence and recommendations in this West African context and advocacy building.
A multidisciplinary and participatory research-action project, carried out by the IRD in Senegal and financed by Sidaction, accompanies the three specific objectives of the project.
Expected impact :
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Seamless operationalisation of the supported and coordinated transition in care process and scaling up to the level of the 12 countries of the EVA network.
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Young associative actors are able to advocate to guide decision-makers, based on the evidence they have helped to produce (participatory approach)
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The ultimate change, expected at the end of the project, is that institutional stakeholders will integrate these recommendations into the national programme for the care of PLHIV, both operationally and financially.
Study Design
Outcome Measures
Primary Outcome Measures
- retention in care [Month 12]
percent of adolescents who remain in care
- retention in care [Month 21]
percent of adolescents who remain in care
Secondary Outcome Measures
- virologic suppression [Month 12]
percent of adolescents who maintain or reach undetectable viral load
- virologic suppression [Month 21]
percent of adolescents who maintain or reach undetectable viral load
- quality of life in relation to health [Month 12]
percent of adolescents who improve their score of quality of life in relation to health
- quality of life in relation to health [Month 21]
percent of adolescents who improve their score of quality of life in relation to health
- level of preparedness to adult care [Month 12]
percent of adolescents who improve their score of preparedness to adult care
Eligibility Criteria
Criteria
Inclusion Criteria:
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being HIV-infected
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aged 15 to 24 years
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on antiretroviral treatment
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HIV status disclosed
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caretaker's written consent (if < 18 years)
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adolescent's written consent
Exclusion Criteria:
- mental illness
Contacts and Locations
Locations
| Site | City | State | Country | Postal Code | |
|---|---|---|---|---|---|
| 1 | CHU CDG | Ouagadougou | Burkina Faso | ||
| 2 | CHU YO | Ouagadougou | Burkina Faso | ||
| 3 | Chnear Albert Royer | Dakar | Senegal | 00000 | |
| 4 | Centre hospitalier Roi Baudouin | Guediawaye | Senegal |
Sponsors and Collaborators
- Institut de Recherche pour le Developpement
- Sidaction
- EXPERTISE FRANCE, Paris France
- Children and HIV Network in AFRICA (EVA), Dakar Senegal
- Cheikh Anta Diop University, Senegal
Investigators
None specified.Study Documents (Full-Text)
None provided.More Information
Publications
None provided.- 999999