Study The Knowledge and Attitude Towards Epilepsy Among Relatives of People With Epilepsy and Their Impact on The Patient's Quality of Life
Study Details
Study Description
Brief Summary
Epilepsy is a common neurological condition that affects personal and familial behavior and social support . About 50 million people worldwide suffer from epilepsy and the prevalence of active epilepsy in developing countries is 5 to 10 per 100 persons . Individuals with epilepsy may suffer from psychological issues such as depression, anxiety, and psychosis . Accordingly, living with a person with epilepsy will provide some challenges, particularly at home. Studies have reported that relatives of people with epilepsy have an increased risk of anxiety. Epilepsy can inflict an enormous burden on both the people with epilepsy (PWE) and their family caregivers, decreasing their quality of life and daily efficiency.
| Condition or Disease | Intervention/Treatment | Phase |
|---|---|---|
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Study Design
Outcome Measures
Primary Outcome Measures
- Knowledge and attitudes toward epilepsy among close Relatives of people with Epilepsy. [1 year]
This study will be conducted to assess the degree of knowledge and attitudes toward epilepsy among close Relatives of people with Epilepsy. A structured questionnaire will be administered to the accompanying relative. The questionnaire will assess this knowledge and the sources that close relatives obtain this knowledge from, including general attitude towards the People with epilepsy, and contains section that assess sigma about epilepsy using Stigma scale of epilepsy.
- Quality of life of people with epilepsy. [1 year]
We will use the Quality of life in epilepsy-10 inventory (QOLIE-10) as the main collection tool as regard quality of life of people with epilepsy.
Eligibility Criteria
Criteria
Inclusion Criteria:
- The participants Will be the close relatives of people with epilepsy who had a close relationship with the patient and living in the same house. The respondents will include the mothers, fathers, brothers, sisters, or the husband/wife, sons of patients.
The patients will be patients diagnosed of epilepsy for at least 6 months, who were using antiepileptic drugs.
Exclusion Criteria:
- The Relatives not living in the same house or not in direct contact with the patients or younger than 16 years old will be excluded from the study.
The persons who had major medical or mental health problems other than epilepsy that would affect QOL will be excluded.
Contacts and Locations
Locations
| Site | City | State | Country | Postal Code | |
|---|---|---|---|---|---|
| 1 | Sohag university hospital | Sohag | Egypt | 82611 |
Sponsors and Collaborators
- Mohamed Adel Abdellah
Investigators
None specified.Study Documents (Full-Text)
None provided.More Information
Publications
- Bener A, al-Marzooqi FH, Sztriha L. Public awareness and attitudes towards epilepsy in the United Arab Emirates. Seizure. 1998 Jun;7(3):219-22. doi: 10.1016/s1059-1311(98)80039-3.
- Ekeh BC, Ekrikpo UE. The Knowledge, Attitude, and Perception towards Epilepsy amongst Medical Students in Uyo, Southern Nigeria. Adv Med. 2015;2015:876135. doi: 10.1155/2015/876135. Epub 2015 Mar 31.
- Mollaoglu M, Mollaoglu M, Durna Z. Validity and Reliability of the Quality of Life in Epilepsy Inventory (QOLIE-10) For Turkey. Noro Psikiyatr Ars. 2017 Sep;54(3):239-243. doi: 10.5152/npa.2016.13809. Epub 2017 Jan 12.
- Ohaeri JU, Awadalla AW, Farah AA. Quality of life in people with epilepsy and their family caregivers. An Arab experience using the short version of the World Health Organization quality of life instrument. Saudi Med J. 2009 Oct;30(10):1328-35.
- Wheless JW. Intractable epilepsy: A survey of patients and caregivers. Epilepsy Behav. 2006 Jun;8(4):756-64. doi: 10.1016/j.yebeh.2006.03.010. Epub 2006 May 3.
- Soh-Med-22-11-05