Suitability of a Self-report Questionnaire to Assess Adaptive Functioning for Persons With Intellectual Disability
Study Details
Study Description
Brief Summary
In the proposed study, the investigators aim to investigate whether the existing ABAS-3 self-report questionnaire is suitable to be completed meaningfully by individuals who are perceived as having mild intellectual disability (55<IQ<85) based on cognitive impairment. Based on the participants' experiences and researchers' expertise, the investigators develop a 'more inclusive' self-report version. The investigators then look at the extent to which participants indicate that they understand this version better, based on user experiences and limited psychometric research. In doing so, the investigators also compare the outcomes of the self-report and informant-report variant.
| Condition or Disease | Intervention/Treatment | Phase |
|---|---|---|
|
N/A |
Study Design
Arms and Interventions
| Arm | Intervention/Treatment |
|---|---|
| Experimental: Experimental Persons with Mild Intellectual Disability (MID) or Borderline Intellectual Functioning (BIF) complete the ABAS-3 in assisted form on two occasions: the original version the first time and an adapted version after a few weeks. |
Diagnostic Test: Adaptive functioning self-report questionnaire
A self-report questionnaire for assessing level of adaptive functioning
Diagnostic Test: Adaptive functioning self-report questionnaire - adapted
A self-report questionnaire for assessing level of adaptive functioning, adapted to the communication level of the participant
|
Outcome Measures
Primary Outcome Measures
- Text comprehension - HyTeC T0 [At baseline (T0)]
Level of verbal understanding of instructions and questions in the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) questionnaire - results from HyTeC-cloze tests. The HyTeC-cloze (Hybrid Text Comprehension cloze) is a test to assess the level of text comprehension for a body of text.
- Text comprehension - HyTeC T1 [Approximately 8 weeks after baseline (T1)]
Level of verbal understanding of instructions and questions in an adapted version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) questionnaire - results from HyTeC-cloze tests. The HyTeC-cloze (Hybrid Text Comprehension cloze) is a test to assess the level of text comprehension for a body of text.
- Text comprehension - missings T0 [At baseline (T0)]
Level of verbal understanding of questions in the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) questionnaire. Outcomes are 1. number of missing (unscored) items (min 0 - max 30), 2. number of 'don't know' answers (min 0 - max 30) and 3. a composite score of 1 and 2.
- Text comprehension - missings T1 [Approximately 8 weeks after baseline (T1)]
Level of verbal understanding of questions in an adapted version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) questionnaire. Outcomes are 1. number of missing (unscored) items (min 0 - max 30), 2. number of 'don't know' answers (min 0 - max 30) and 3. a composite score of 1 and 2.
- Text comprehension - cognitive interviews T0 [At baseline (T0)]
Level of verbal understanding of questions in the questionnaire - qualitative analysis of answers from cognitive interviews during assessment of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition).
- Text comprehension - cognitive interviews T1 [Approximately 8 weeks after baseline (T1)]
Level of verbal understanding of questions in the questionnaire - qualitative analysis of answers from cognitive interviews during assessment of an adapted version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition).
Secondary Outcome Measures
- Self-reported Adaptive Functioning - original ABAS-3 scores [At baseline (T0)]
The ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) is an observational scale that measures adaptive behaviour. Both self-report and informant report versions are available. In the context of the current study, a 30-item abbreviated version is used. Composite scores are calculated: a total score and three domain scores (conceptual, social and practical domain). Scores range from 0-90 for the total scale and 0-30 for each domain scale. Higher scores indicate better adaptive functioning.
- Self-reported Adaptive Functioning - adapted ABAS-3 scores [Approximately 8 weeks after baseline (T1)]
The ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) is an observational scale that measures adaptive behaviour. Both self-report and informant report versions are available. In the context of the current study, a 30-item abbreviated version is used. Composite scores are calculated: a total score and three domain scores (conceptual, social and practical domain). Scores range from 0-90 for the total scale and 0-30 for each domain scale. Higher scores indicate better adaptive functioning. The second time participants complete the ABAS (approximately 8 weeks after baseline, T1), an adapted version is used, with language and design adapted to the comprehension level of participants according to the outcomes at baseline (T0).
- Informant-reported Adaptive Functioning - adapted ABAS-3 scores [Approximately 8 weeks after baseline (T1)]
The ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) is an observational scale that measures adaptive behaviour. Both self-report and informant report versions are available. In the context of the current study, a 30-item abbreviated version is used. Composite scores are calculated: a total score and three domain scores (conceptual, social and practical domain). Scores range from 0-90 for the total scale and 0-30 for each domain scale. Higher scores indicate better adaptive functioning. For the informant-report an adapted version of the original is used; the adaptations for the self-report version are replicated for the informant version.
- Self-reported Adaptive functioning - SCAF [At baseline (T0)]
The SCAF (Screener for Adaptive Functioning) is a screening questionnaire for adaptive functioning for individuals who may have MID or BIF. The SCAF yields a total AF score (min 0 - max 24), with higher scores indicating better adaptive functioning.
Eligibility Criteria
Criteria
Inclusion Criteria:
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Age 18 years or older
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Last known Total Intelligence Quotient (TIQ) 55 - 85
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Receiving support from a care organization for persons with ID.
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A care worker who knows the participant for at least a year and knows him well enough tot complete the informant version of the ABAS-3 is available.
Exclusion Criteria:
• Severe physical or sensory impairment limiting ability to participate.
Contacts and Locations
Locations
| Site | City | State | Country | Postal Code | |
|---|---|---|---|---|---|
| 1 | Koraal | Sittard | L | Netherlands | 6130 PC |
Sponsors and Collaborators
- Koraal
- University of Amsterdam
- Zuyd University of Applied Sciences
Investigators
- Principal Investigator: Roel Kooijmans, MSc, Koraal
Study Documents (Full-Text)
None provided.More Information
Publications
- Koraal-ABAS-Kooijmans