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Solution Focused Coaching Strategy Within a Paediatric Multidisciplinary Neuromuscular Clinic

Sponsor
Holland Bloorview Kids Rehabilitation Hospital (Other)
Overall Status
Unknown status
CT.gov ID
NCT02997514
Collaborator
AHSC AFP Innovation Fund- Ontario Government (Other)
40
Enrollment
2
Arms
34
Duration (Months)

Study Details

Study Description

Brief Summary

The purpose of this study is to implement Solution Focused Coaching in pediatric rehabilitation (SFC-peds) within the multidisciplinary neuromuscular clinic at Holland Bloorview Kids Rehabilitation Hospital and evaluate its effect on children's ability to set and attain personally meaningful goals. A secondary goal is to determine the impact of SFC-peds on self-determination in children with neuromuscular conditions. This study aims to compare two methods of SCF-peds delivery, a single coaching session vs. intensive coaching (5 sessions) on goal attainment. This study will also help researchers and clinicians understand the types of goals that are set by children with neuromuscular conditions. Lastly, this study is going to explore with the participants their perception of the feasibility of using this methodology within a clinical context.

Condition or Disease Intervention/Treatment Phase
  • Behavioral: Solution Focused Coaching
  • Behavioral: Intensive Solution Focused Coaching
 N/A

Detailed Description

Nationally, standards of care have been published for paediatric neuromuscular (NM) conditions to optimize care, improve quality of life and increase life span. Children with NM conditions are followed in regional multidisciplinary clinics in Ontario and across Canada. At each visit they can be seen by 8 health care providers each focusing on and making recommendations for the different aspects of their care. Currently, there are no evidenced based interventions for children with NM conditions evaluating the ability of children to set and attain their care goals and/or other personally meaningful goals.

Self-determination is defined as the ability to "use skills, knowledge and beliefs that enable a person to engage in goal directed, self-regulated, autonomous behavior." The development of self-determination is a process that begins in childhood. Solution Focused Coaching (SFC) is a strengths- based, client-centered approach to service delivery that supports clients to build on their existing capacity to move closer to meaningful goals. This study will evaluate the impact of SFC on goal setting, achievement and self determination in children with NM conditions.

Study Design

Study Type:
Interventional
Anticipated Enrollment :
40 participants
Allocation:
Randomized
Intervention Model:
Parallel Assignment
Masking:
None (Open Label)
Primary Purpose:
Treatment
Official Title:
Implementation and Evaluation of Solution Focused Coaching Strategy Within a Paediatric Multidisciplinary Neuromuscular Clinic
Study Start Date :
Jan 1, 2017
Anticipated Primary Completion Date :
Nov 1, 2019
Anticipated Study Completion Date :
Nov 1, 2019

Arms and Interventions

Arm Intervention/Treatment
Active Comparator: Intensive Solution Focused Coaching

Participants will engage in 5 solution focused coaching sessions, each up to 60 minutes in duration

Behavioral: Intensive Solution Focused Coaching
Intensive SFC is an approach that uses strategic questioning to help the client envision what they would like to be different and how they will take action towards achieving their goals.
Active Comparator: Solution Focused Coaching

Participants will engage in 1 solution focused coaching session up to 60 minutes in duration

Behavioral: Solution Focused Coaching
SFC is an approach that uses strategic questioning to help the client envision what they would like to be different and how they will take action towards achieving their goals.

Outcome Measures

Primary Outcome Measures

  1. Change on Canadian Occupational Performance Measure (COPM) [Week 0 and Week 14]

  2. Change on Goal Attainment Scaling (GAS) [Week 0 and Week 14]

Secondary Outcome Measures

  1. American Research Council's Self Determination Scale (ARC SDS) [Week 0 and Week 14]

  2. Solution-Focused Fidelity Instrument (SFFI) [Weeks: 2, 3, 4, 6, 10 and 14]

    Done after each coaching session

  3. Thematic Analysis of Interview Questions Exploring Solution Focused Coaching Process [Week 14]

Eligibility Criteria

Criteria

Ages Eligible for Study:
10 Years to 18 Years
Sexes Eligible for Study:
All
Accepts Healthy Volunteers:
No
Inclusion Criteria:

  • child has a primary NM diagnosis

  • child ages 10-18 years

  • child able to converse orally in English

  • child has a willingness to engage in the coaching intervention

  • child is aware that they have a neuromuscular condition

  • child is followed clinically in the Neuromuscular Clinic at Holland Bloorview Kids Rehabilitation Hospital at 4-6 month intervals

  • child has internet access at home and a device to connect to the internet with a camera

  • child is able to demonstrate capacity to consent

  • parent is able to read and write in English

Exclusion Criteria:

-child has a moderate to severe intellectual disability

Contacts and Locations

Locations

No locations specified.

Sponsors and Collaborators

  • Holland Bloorview Kids Rehabilitation Hospital
  • AHSC AFP Innovation Fund- Ontario Government

Investigators

  • Principal Investigator: Laura McAdam, MD, Holland Bloorview Kids Rehabilitation Hospital

Study Documents (Full-Text)

None provided.

More Information

Publications

Responsible Party:
Holland Bloorview Kids Rehabilitation Hospital
ClinicalTrials.gov Identifier:
NCT02997514
Other Study ID Numbers:
  • 16-651
First Posted:
Dec 20, 2016
Last Update Posted:
Feb 18, 2019
Last Verified:
Jul 1, 2018
Individual Participant Data (IPD) Sharing Statement:
No
Plan to Share IPD:
No
Keywords provided by Holland Bloorview Kids Rehabilitation Hospital
Solution focused coaching
Self determination
Additional relevant MeSH terms:
Neuromuscular Diseases
Pharmaceutical Solutions

Study Results

No Results Posted as of Feb 18, 2019