EPR: Representations and Strategies for Recovery

Sponsor

Hôpital le Vinatier (Other)

Overall Status

Completed

CT.gov ID

NCT03028545

Collaborator

(none)

Enrollment

Location

Arms

38.8

Actual Duration (Months)

Patients Per Site Per Month

Study Details

Study Description

Brief Summary

In the recent context of deinstitutionalization and longitudinal studies pointing to a large number of positive long-term outcommes for people affected by a psychiatric disorder (schizophrenia, bipolar disorder, eating disorder, severe personality disorder, etc.), the possibility of overcoming the consequences of a psychiatric pathology emerges as a solid fact. Therefore, the existence of this possibility calls for the identification of the determinants underlying of the various outcomes over time of those affected by a severe psychiatric disorder, in particular those likely to underpin the most positive developments.

While it is well known from a medical point of view that certain dimensions affect the prognosis of persons affected by a severe psychiatric disorder (such as the persistence of negative symptoms or cognitive disorders in schizophrenic disorders), prognosis from a purely medical perspective (and putting aside the role of the person and his environment) seems to be able to account only for a modest proportion of the prognosis of people affected by a serious psychiatric disorder.

It is this fact that has gradually led to the emergence of complementary models capable of enriching the understanding of the determinants of the future of people affected by a severe psychiatric disorder, in particular models inviting to separate "becoming of the person" from the " psychiatric disorder "to take into account the" personal role of the person "in his or her own healing. This perspective is the "recovery" perspective.

Recovery process is defined as a personal trajectory which includes the person's experiences and the reactions of his / her environment following the installation of a psychiatric disorder, which can support a mode of release of the status of "psychiatric patient". Recovery thus implies an "approach underpinned by the understanding of the human response to pathology" (Noiseux) and, one might add, of its environment.

However, while these studies point to a number of crucial dimensions involved in the recovery of a severe psychiatric disorder, one of the important limitations of these studies is the distance from any psychopathological consideration, thus setting aside the possibility of specific processes of recovery depending of the pathology. The identification of recurrent experiential logics specific to the various psychiatric disorders therefore appears to be an important field of investigation. It would potentially be able to guide the development of new therapeutic devices based on the recovery model.

Condition or Disease	Intervention/Treatment	Phase
Schizophrenia, Undifferentiated Anorexia Bipolar Disorders Personality Disorders	Behavioral: Collection of the individual narrative, semi-directed interviews	N/A

Detailed Description

Elaboration of a semi directed grid (exploratory phase)
Collection of individual narratives
Data analysis, according to IPA method (interpretative phenomenological analysis)

On the basis of individual narratives
On the basis of a focus group

Publication of results

Study Design

Study Type:

Interventional

Actual Enrollment :

37 participants

Allocation:

Non-Randomized

Intervention Model:

Parallel Assignment

Masking:

None (Open Label)

Primary Purpose:

Other

Official Title:

Representations, Strategies and Identity Redefinition in the Recovery Process: Exploratory Study

Actual Study Start Date :

Jan 4, 2017

Actual Primary Completion Date :

Sep 30, 2019

Actual Study Completion Date :

Mar 31, 2020

Arms and Interventions

Arm	Intervention/Treatment
Other: schizophrenia Exploring and understanding, through a multidisciplinary exploration (medical, anthropological and sociological) representations and recovery strategies in schizophrenia	Behavioral: Collection of the individual narrative, semi-directed interviews Visit one : individual interview Individual narrative Passing Psychometric Measurement Scales of Recovery: Score at Warwick and Wellness Scale Andreasen scale score Visit two Focus group
Other: bipolar disorders Exploring and understanding, through a multidisciplinary exploration (medical, anthropological and sociological) representations and recovery strategies in bipolar disorders	Behavioral: Collection of the individual narrative, semi-directed interviews Visit one : individual interview Individual narrative Passing Psychometric Measurement Scales of Recovery: Score at Warwick and Wellness Scale Andreasen scale score Visit two Focus group
Other: eating disorders Exploring and understanding, through a multidisciplinary exploration (medical, anthropological and sociological) representations and recovery strategies in eating disorders	Behavioral: Collection of the individual narrative, semi-directed interviews Visit one : individual interview Individual narrative Passing Psychometric Measurement Scales of Recovery: Score at Warwick and Wellness Scale Andreasen scale score Visit two Focus group
Other: personality disorders Exploring and understanding, through a multidisciplinary exploration (medical, anthropological and sociological) representations and recovery strategies in personality disorders	Behavioral: Collection of the individual narrative, semi-directed interviews Visit one : individual interview Individual narrative Passing Psychometric Measurement Scales of Recovery: Score at Warwick and Wellness Scale Andreasen scale score Visit two Focus group

Outcome Measures

Primary Outcome Measures

Collection of individual narratives to understand the recovery process [one year]
Semi-directed maintenance grid

Secondary Outcome Measures

Change from baseline in the Quality of Well-Being at one year [one year]
Warwick-Edinburgh Mental Wellbeing Scale (WEMWBS)
Change from baseline in measures of psychological recovery at one year [one year]
Stages of recovery instrument (STORI ANDREASEN)

Eligibility Criteria

Criteria

Ages Eligible for Study:

18 Years to 80 Years

Sexes Eligible for Study:

All

Accepts Healthy Volunteers:

Inclusion Criteria:

Age 18 to 80 years
Psychiatric diagnosis according to DSM V critera of schizophrenia, eating disorder, bipolar disorder, personality disorder
In recovery scale
Informed of their diagnosis