Resilience in East Asian Immigrants
Study Details
Study Description
Brief Summary
The purpose of the study is to develop a culturally tailored digital resilience-building intervention to help East Asian immigrants engage in advance care planning discussions with their family caregivers.
| Condition or Disease | Intervention/Treatment | Phase |
|---|---|---|
|
N/A |
Detailed Description
Advance care planning (ACP) is a process to facilitate decision-making for future care and document values and preferences. However, the advance directive completion rates in East Asian Americans are low, which may extend to disparities in end-of-life care, including rates of hospice use and prevalence of unwanted aggressive treatments. To address this, this study uses information technology to develop a culturally tailored digital resilience-building intervention with and for East Asian immigrants to help them engage in ACP discussions. There are two aims of this study: (1) Conduct semi-structured interviews with a total of 30 religious leaders to identify the barriers and facilitators associated with discussing ACP and death-related topics with immigrants from China/Taiwan, Japan, and Korea and (2) Develop a culturally tailored digital resilience-building intervention using think-aloud interviews with 27 pairs of East Asian immigrants with cancer and their family caregivers (9 pairs each for immigrants from China/Taiwan, Japan, and Korea).
Study Design
Arms and Interventions
| Arm | Intervention/Treatment |
|---|---|
| Experimental: Culturally Tailored Digital Resilience-Building The Culturally Tailored Resilience-Building intervention will be provided to East Asian immigrants with cancer and their family caregivers. |
Behavioral: Culturally Tailored Digital Resilience-Building
The Culturally Tailored Digital Resilience-Building intervention consists of 6 modules, including an introduction of advance care planning and resilience skills that specifically address cultural beliefs and barriers.
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Outcome Measures
Primary Outcome Measures
- Usability [Immediately at the end of the think-aloud interview]
Use the System Usability Scale to assess the usability of the intervention
Secondary Outcome Measures
- Acceptability [Immediately at the end of the think-aloud interview]
Use the Acceptability E-scale to assess the acceptability of the intervention
Eligibility Criteria
Criteria
Inclusion Criteria for Patients:
- Immigrants will be eligible for the study if they (1) are ≥ 18 years of age; (2) have a cancer diagnosis documented in the electronic medical record; (3) are able to read and respond to questions in English, Mandarin, Cantonese, Japanese, or Korean; (4) have a family caregiver willing to participate in the study; and (5) have adequate electronic health literacy with a score of > 30 on the electronic-Health Literacy Scale.
Exclusion Criteria for Patients:
- Patients who (1) have cognitive impairment per a Short Portable Mental Status Questionnaire with more than three errors; (2) have completed an advance directive; or (3) were born in the US.
Inclusion Criteria for Family Caregivers:
- Family caregivers will be eligible if they (1) are ≥ 18 years of age; (2) are able to read and respond to questions in English, Mandarin, Cantonese, Japanese, or Korean; (3) are identified by the patient as a family caregiver; and (4) have adequate electronic health literacy with a score of > 30 on the electronic-Health Literacy Scale.
Contacts and Locations
Locations
No locations specified.Sponsors and Collaborators
- University of Illinois at Chicago
- Rockefeller University
Investigators
None specified.Study Documents (Full-Text)
None provided.More Information
Publications
None provided.- 2023-0560
- KC_Awd_114452